Tag Archives: Caregivers

After the institutions: Why Ontario’s decision to shut long-term care facilities haunts some to this day

Ottawa Citizen | November 25, 2016, Written by Rob Corbett

Ontario Ombudsman Paul Dubé released a report this summer titled Nowhere to Turn. It came with the sub-title: “Investigation into the Ministry of Community and Social Services response to situations of crisis involving adults with developmental disabilities.”

[Read the full story here]

Rideau Regional Centre

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Facing death, and a mountain of worry

Times Colonist | July 17, 2016, Written by Cindy E. Harnett

Marilyn Kowalchuk is facing eventual immobility and death, but she also has to look out for her ailing husband’s welfare and plan for her only daughter’s future.

To make matters worse, the former Ontario nuclear-plant project engineer has been told that she will have to pay $1,500 a week for the whey-reduced formula she may need when she loses the ability to swallow.

[Read the full story here]


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Man charged after trying to burn down house with himself, son with Down syndrome inside

Global News | April 10, 2016, Written by Annabelle Olivier

TERREBONNE – A Sainte-Anne-des-Plaines man is facing numerous charges, including attempted murder, after he allegedly tried to kill himself and his son with Down syndrome, by setting the family home on fire.

The suspect, posted  a cry for help on his Facebook page Wednesday before allegedly setting the house on fire.

While the video is no longer accessible, Daniel Fortier with Terrebonne police confirmed its existence and said that the suspect was critical of Premier Phillipe Couillard and Health Minister Gaetan Barrette for not doing more to help families in difficult situations.

[Read the full story here]

Image of house after fire

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Quebec parents of severely disabled children plead for more financial help

CBC News | Marc 15, 2016, Written by Elias Abboud

A group representing parents of severely disabled children in Quebec has approached Health Minister Gaétan Barrette with a solution they say will help them care for their kids at home.

The parents say they provide their children with round-the-clock care, 24/7, and they get little financial support. 

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Anouk and Yan Lanouette-Turgeon's two-year-old daughter Lhassa, bottom left, has a neurological disorder and requires round-the-clock care. Their son Éli, 5, has Down syndrome.

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B.C. families raise concerns about lack of help for special needs adults

Global News | December 10, 2015

Aaron Lewis has been waiting three years for Community Living B.C. to help him find a place to live.

“We were told…CLBC has no contingency for anyone who is stable. So there is no forward budgeting for any adult who is not in crisis,” said mother Jean Lewis.

[Read the full story here]

Caregiver shaving Aaron Lewis' face ahead of a night out

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10 years of care puts family on verge of burnout

Northern Life | November 27, 2015, Written by Jonathan Migneault

As the primary caregiver for her husband over the last decade, Nan Amaratunga has reached the point of burnout.

In 2005, her husband, Laxman (Lucky) Amaratunga, was diagnosed with amyotrophic lateral sclerosis (ALS), a progressive and invariably fatal neurological disease that attacks a person’s nerve cells and impairs their ability to control their muscles.

[Read the full story here]

Dr. Ruwan Amaratunga reads out the alphabet on a special board so his father Laxman (Lucky) Amaratunga, who has ALS, so he can communicate. When his son reads out the letter he wants, Lucky blinks to let him know. They then restart the process with the next letter. Photo by Jonathan Migneault.

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