Tag Archives: advocacy

More than 2,900 Ontarians with developmental disabilities live in long-term care facilities

Global News | July 22, 2016, Written by Christina Stevens

Since the province closed down institutions a decade ago, a lack of residential placements and community supports has resulted in individuals who are developmentally delayed being moved into seniors’ homes.

“They’ve become dumping grounds, sadly,” said Patricia Spindel, an expert in Community Health and Developmental Services.

[Read the full story here]

Teresa admitted to nursing home

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Opinion: A desperate parent’s plea: Let me outlive my special-needs child

Montreal Gazette | June 1, 2016, Written by Katharine Cukier

And here’s what you should know: In our frequent moments of pessimism, “Just give me one more day’’ is the secret mantra of parents of disabled children across Quebec.

I’m not making cryptic references to euthanasia, but rather exposing the desperate, magical thinking of loving parents who have no reason to believe their vulnerable child will be safe once they are gone. Given that services for adults with intellectual disabilities in Quebec are getting even worse, I really don’t know what else to do except pray to my particular non-existent god to intervene and allow me to live one day longer than my son.

[Read the full story here]

Undated photo of Benjamin, Katharine, Eric Houde and Marguerite. (Courtesy Katharine Cukier) ORG XMIT: POS1407310957384593

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Youth with special needs demand a say in decisions affecting their lives

Toronto Star | May 10, 2016, Written by Andrea Gordon

Rana Nasrazadani loved her elementary years, but high school was “the first low point in my life.”

Teachers didn’t speak to her directly about her marks or assignments, recalls the 19-year-old. Instead they talked to the educational assistants she relied on because of her physical disability and special learning needs. When it came to accommodations she needed in the classroom, she was rarely asked her opinion.

[Read the full story here]

Rana Nasrazadani's recollections are among 170 submissions at the heart of a groundbreaking new report released Tuesday that reveals the obstacles youth with disabilities face on a daily basis in schools and communities.

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Disabled Canadians find ally in National Benefit Authority

Ottawa Sun | March 27, 2016

It’s estimated that nearly 4.2 million Canadians have some sort of long-term disability, and many of them have increased financial obligations as a result. This number is expected to grow in coming years as Canada’s elderly population continues to outgrow younger demographics.

Cost of living for the disabled is notably higher than Canadians without disabilities because they often require care-workers and home nurses, special medical devices and pricey medications.

[Read the full story here]

Paul Rosen

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Quebec parents of severely disabled children plead for more financial help

CBC News | Marc 15, 2016, Written by Elias Abboud

A group representing parents of severely disabled children in Quebec has approached Health Minister Gaétan Barrette with a solution they say will help them care for their kids at home.

The parents say they provide their children with round-the-clock care, 24/7, and they get little financial support. 

[Read the full story here]

Anouk and Yan Lanouette-Turgeon's two-year-old daughter Lhassa, bottom left, has a neurological disorder and requires round-the-clock care. Their son Éli, 5, has Down syndrome.

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ANALYSIS | From shackles to the streets: How the mentally ill are treated in Yellowknife

CBC News | March 14, 2016, Written by Richard Gleeson

In a Yellowknife courtroom on Thursday afternoon a man from Cambridge Bay, Nunavut, appeared with his arms and legs shackled. The man had spent almost two months in prison, much of it in solitary confinement, some of it in a special suit designed to prevent him from hurting himself. (The prosecutor said he’s not a danger to the public.)

The 34-year-old was sentenced to time served on charges of assault and assaulting a peace officer and, less than an hour later, walked out of the courthouse alone to resume his life as a homeless person on the streets of Yellowknife.

It was a remarkable example of the shortcomings of mental health care when it’s mainly delivered by police, lawyers, judges and jailers. 

[Read the full story here]

This 34-year-old was brought into a Yellowknife courtroom in shackles. He was sentenced to time served and, less than an hour later, walked out of the courthouse alone to resume his life as a homeless person.

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Mom pushes for more help for son living at Nova Scotia Hospital

CBC News | January 19, 2016, Written by Jennifer Henderson

Matthew Meisner, 30, has been a patient at the Nova Scotia Hospital on a locked-down unit for nearly 12 years.

The Blandford, N.S., man has a severe form of autism and a mood disorder which makes his behaviour aggressive and unpredictable.

All 15 residents of the hospital’s locked unit, known as Emerald Hall, have a “dual diagnosis:” an intellectual disability as well as a mental illness or behavioural issue.

[Read the full story here]

Matthew Meisner, 30, has a severe form of autism and a mood disorder which makes his behaviour aggressive and unpredictable. He's lived at the Nova Scotia Hospital in Dartmouth for over a decade.

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P.E.I. human rights discrimination hearing wraps up

CBC News| January 15, 2016

Millie King alleges the provincial government is discriminating against her 24-year-old daughter, who has schizophrenia. King was denied help for her daughter through the province’s disability support program — help she said was needed to pay for supported housing, where she could have some help and supervision.

Friday, the panel of three human rights commissioners heard again that the program isn’t available for people with mental illnesses, only those with physical or intellectual disabilities. 

[Read the full story here]

Bob Creed

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