Smithers Interior News | December 15, 2014, Written by Chris Gareau
Four-month-old Kelel’s home has been turned into a triage centre. Equipment just to keep the boy named after Superman breathing and feeding fills the Smithers home dad Joe Bramsleven describes as a “bubble,” quarantined from illnesses from visitors that would be fatal.
Kelel has a rare genetic disorder: spinal muscular atrophy (SMA). He has Type 1, the harshest diagnosis that carries with it a life expectancy of one to two years. Survival beyond the third year is very rare. It takes 24-hour care to keep Kelel alive.