Caring for baby Kelel

Smithers Interior News | December 15, 2014, Written by Chris Gareau

Four-month-old Kelel’s home has been turned into a triage centre. Equipment just to keep the boy named after Superman breathing and feeding fills the Smithers home dad Joe Bramsleven describes as a “bubble,” quarantined from illnesses from visitors that would be fatal.

Kelel has a rare genetic disorder: spinal muscular atrophy (SMA). He has Type 1, the harshest diagnosis that carries with it a life expectancy of one to two years. Survival beyond the third year is very rare. It takes 24-hour care to keep Kelel alive.

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Kelel with his big brother Dominick. Kelel has already been medevaced four times. - Contibuted

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